Intersex rights in the United States
Intersex people in the United States have some of the same rights as other people, but with significant gaps, particularly in protection from non-consensual cosmetic medical interventions and violence, and protection from discrimination. Actions by intersex civil society organizations aim to eliminate harmful practices, promote social acceptance, and equality. In recent years, intersex activists have also secured some forms of legal recognition.
Early accounts of intersex people in North America include those of English immigrant Thomas(ine) Hall, in 17th-century colonial Virginia and 19th-century Connecticut intersex man Levi Suydam, pronounced male and so eligible to vote. Early common law, like canon law, held that hermaphrodites were to be treated as male or female depending on the prevailing sex.
In September 2017, an intersex and non-binary student, Scout Schultz was shot dead at the Georgia Institute of Technology. In November 2017, Betsy Driver became the first intersex person openly elected to public office in the United States. Driver was elected as a council person in the New Jersey city of Flemington. Driver is the second publicly intersex person elected to office, following Tony Briffa in Australia.
Intersex medical interventions
Since the mid-twentieth century, U.S. physicians have considered intersex status in infants a "psychosocial emergency" and performed "normalizing" or "reconstructive" genital surgery without considering non-surgical alternatives (e.g., counseling). When deciding whether to assign the intersex infant "male" or "female," the factors typically considered are potential for fertility and sexual penetration. These surgeries still continue in the U.S. today despite being medically unnecessary (that is, chiefly cosmetic) and potentially injurious to the patient's sexual pleasure.
The intersex movement
The U.S. intersex movement developed in the 1990s and 2000s, through the establishment of the Intersex Society of North America (ISNA) and the AIS Support Group USA (now called AISDSD) in the 1990s, and Advocates for Informed Choice (now interACT), Bodies Like Ours, Intersex Initiative, and Organisation Intersex International, (now the Intersex Campaign for Equality) in the following decade.
The Intersex Society of North America (ISNA) was a non-profit advocacy group founded in 1993 by Cheryl Chase to end shame, secrecy, and unwanted genital surgeries. Amongst other activities, it published the journal Hermaphrodites with Attitude.
Intersex activism between the late 1990s and mid 2000s led from demonstrating outside a national pediatric conference, to speaking inside clinical conferences, and the first human rights investigation into medical "normalization", by the Human Rights Commission of the City and County of San Francisco. However, coercive intersex medical interventions persist.
ISNA closed in June 2008 after supporting the creation of a new clinical term for intersex conditions, Disorders of Sex Development (DSD), albeit ambivalently as a means of opening "many more doors" and engaging with clinicians, and also supporting the establishment of a new organization, the Accord Alliance, set up to promote comprehensive and integrated approaches to healthcare. New organizations such as Intersex Campaign for Equality and interACT were since established with civil and human rights goals.
interACT has worked with MTV on the program Faking It, notable for providing the first intersex main character in a television show, and television's first intersex character played by an intersex actor. In 2017, interACT worked with model Hanne Gaby Odiele to tackle social taboos.
Physical integrity and bodily autonomy
Demonstration and American Academy of Pediatrics statement
In October 1996, the American Academy of Pediatrics issued a press statement stating that:
- The Academy is deeply concerned about the emotional, cognitive, and body image development of intersexuals, and believes that successful early genital surgery minimizes these issues.
- Research on children with ambiguous genitalia has shown that a person's sexual body image is largely a function of socialization, and children whose genetic sexes are not clearly reflected in external genitalia can be raised successfully as members of either sexes if the process begins before 2 1/2 years.
- Management and understanding of intersex conditions has significantly improved, particularly over the last several decades ...
The statement was issued in response to the first public demonstration by intersex people and allies, outside the annual conference of the Academy, in Boston on October 26, 1996. Morgan Holmes has written that the demonstration happened after activists Max Beck and Holmes were excluded from the conference. She states that the pair went to deliver an address, "on long-term outcomes and to challenging their still-prevailing opinion that cosmetic surgery to "fix" intersexed genitals was the best course of action", but were "met, officially, with hostility and were escorted out of the conference by security guards". The demonstration, by Beck and Holmes, with allies from Transexual Menace, is now marked as Intersex Awareness Day.
San Francisco Human Rights Commission report, 2005
A 2005 human rights investigation into the medical "normalization" of intersex people, by the San Francisco Human Rights Commission is thought "likely to be the first human rights report into the treatment of intersex people, certainly in the English language."
- Infant genital surgeries and sex hormone treatments that are not performed for the treatment of physical illness, such as improving urinary tract or metabolic functioning, and have not been shown to alleviate pain or illness (hereafter referred to as "normalizing" interventions) are unnecessary and are not medical or social emergencies.
- "Normalizing" interventions done without the patient's informed consent are inherent human rights abuses.
- "Normalizing" interventions deprive intersex people of the opportunity to express their own identity and to experience their own intact physiology.
- It is unethical to disregard a child's intrinsic human rights to privacy, dignity, autonomy, and physical integrity by altering genitals through irreversible surgeries for purely psychosocial and aesthetic rationales. It is wrong to deprive a person of the right to determine their sexual experience and identity. ...
- It is ethically wrong to treat people differently or unfairly because they are perceived by others to be "monsters" or "oddities."
Clinical shift to Disorders of Sex Development
In 2005, Cheryl Chase, Alice Dreger and others called for the replacement of the word "hermaphrodite" with "Disorders of Sex Development" (DSD). Later the same year, a clinical "Intersex Consensus Meeting" of US and European pediatric endocrine societies adopted "DSD" as a replacement for both intersex and hermaphrodite in medical settings.
The new language of Disorders of Sex Development was always contentious as was seen as pathologizing. Scholars and activists, such as Georgiann Davis, and Morgan Holmes, Esther Morris Leidolf, and clinical psychologists like Tiger Devore regarded this shift as a retrenchment of medical authority over intersex bodies. In May 2016, interACT published a statement opposing pathologizing language to describe people born with intersex traits, recognizing "increasing general understanding and acceptance of the term "intersex"".
Research by the Lurie Children's Hospital, Chicago, and the AISDSD Support Group published in 2017 found that 80% of affected Support Group respondents "strongly liked, liked or felt neutral about intersex" as a term, while caregivers were less supportive. The hospital found that "disorders of sex development" terminology may negatively affect care, give offence, and result in lower attendance at medical clinics. The research results for "disorders of sex development" mirrored earlier results from a survey of a congenital adrenal hyperplasia support group, the CARES Foundation.
In 2013, Pidgeon Pagonis testified for interACT before the Inter-American Commission on Human Rights about the medical interventions they were subjected to as an intersex child, alongside Latin Americans Mauro Cabral, Natasha Jiménez and Paula Machado. In 2014, Anne Tamar-Mattis was published on medical interventions as torture in healthcare settings, in a book by the Center for Human Rights & Humanitarian Law at American University Washington College of Law.
In 2016, the United Nations Committee Against Torture asked the United States government to comment on reports of intersex medical interventions on infants and children, following submission of a report by interACT.
Surgeons General statement, 2017
In June 2017, Joycelyn Elders, David Satcher, and Richard Carmona, three former Surgeons General of the United States published a paper at the Palm Center, citing a State Department statement and developments in Germany, Switzerland, Australia, Chile, Argentina, and Malta, and calling for a rethink of early genital surgeries on children with intersex traits. The statement reflected on the history of such interventions, their rationales and outcomes, stating:
When an individual is born with atypical genitalia that pose no physical risk, treatment should focus not on surgical intervention but on psychosocial and educational support for the family and child. Cosmetic genitoplasty should be deferred until children are old enough to voice their own view about whether to undergo the surgery. Those whose oath or conscience says "do no harm" should heed the simple fact that, to date, research does not support the practice of cosmetic infant genitoplasty.
Human Rights Watch/interACT report on U.S. children, 2017
In July 2017, Human Rights Watch and interACT published a report on medically unnecessary surgeries on intersex children, "I Want to Be Like Nature Made Me", based on interviews with intersex persons, families and physicians. The report states that:
Intersex people in the United States are subjected to medical practices that can inflict irreversible physical and psychological harm on them starting in infancy, harms that can last throughout their lives. Many of these procedures are done with the stated aim of making it easier for children to grow up "normal" and integrate more easily into society by helping them conform to a particular sex assignment. The results are often catastrophic, the supposed benefits are largely unproven, and there are generally no urgent health considerations at stake
The report found that intersex medical interventions persist as default advice from doctors to parents, despite some change in some regions of the U.S. and claims of improved surgical techniques, resulting in an uneven situation where care differs and a lack of standards of care, but paradigms for care are still based on socio-cultural factors including expectations of "normality" and evidence in support of surgeries remains lacking. "Nearly every parent" in the study reported pressure for their children to undergo surgery, and many reported misinformation. The report calls for a ban on "surgical procedures that seek to alter the gonads, genitals, or internal sex organs of children with atypical sex characteristics too young to participate in the decision, when those procedures both carry a meaningful risk of harm and can be safely deferred."
The report was acknowledged as an important contribution to research by the American Academy of Pediatrics.
Responses to developments
In a 2017 interview for Harper's Magazine, Laurence Baskin, chief of pediatric urology at University of California, San Francisco, told journalist Sarah Topol "that he would recommend early surgery not just for 5-alpha but for 95 percent of known D.S.D. conditions ... Baskin classifies such operations as corrective surgeries, no different from fixing a cleft palate or clubfoot. "We basically treat them because they have a congenital anomaly"."
In response to the 2017 Human Rights Watch report, Associated Press reported opposition to a ban by CARES Foundation, arguing that parents should be able to agree to surgeries to "reduce the size of the clitoris" without considering "moral and philosophical agendas". Kyle Knight of Human Rights Watch responded that there's no evidence of a health risk, and "There are limits to what parents can do to their kids". interACT states that they are "unaware of any jurisdiction in the U.S. that enforces its own FGM laws in cases where the girl undergoing clitoral cutting has an intersex trait".
In November 2016, GLMA: Health Professionals Advancing LGBT Equality passed a new policy position on patients with differences in sex development, recommending "delay of any surgical interventions and gender-related medical interventions for DSD that are not deemed medically necessary".
Associated Press reported in July 2017 that the American Medical Association Board of Trustees is considering a policy statement "urging doctors to defer intersex surgery on infants and young children" "except when life-threatening circumstances require emergency intervention".
Claims for compensation
M.C. v. Aaronson
The case of M.C. v. Aaronson, advanced by interACT with the Southern Poverty Law Center was brought before the courts in 2013. The child in the case was born in December 2004 with ovotestes, initially determined as male, but subsequently assigned female and placed in the care of South Carolina Department of Social Services in February 2005. Physicians responsible for M.C. initially concluded that surgery was not urgent or necessary and M.C. had potential to identify as male or female, but, in April 2006, M.C. was subjected to feminizing medical interventions. He was adopted in December 2006. Aged 8 at the time the case was taken, he now identifies as male. The Southern Poverty Law Center states: "In M.C.'s condition, there is no way to tell whether the child will ultimately identify as a boy or a girl. Instead, the doctors decided to assign M.C. female and change his body to fit their stereotype of how a girl should look." The defendant in the case, Dr Ian Aaronson, had written in 2001 that "feminizing genitoplasty on an infant who might eventually identify herself as a boy would be catastrophic".
The defendants sought to dismiss the case and seek a defense of qualified immunity, but these were denied by the District Court for the District of South Carolina. In January 2015, the Court of Appeals for the Fourth Circuit reversed this decision and dismissed the complaint, stating that, "it did not "mean to diminish the severe harm that M.C. claims to have suffered" but that a reasonable official in 2006 did not have fair warning from then-existing precedent that performing sex assignment surgery on sixteen-month-old M.C. violated a clearly established constitutional right." The Court did not rule on whether or not the surgery violated M.C.'s constitutional rights. State suits were subsequently filed.
In July 2017, it was reported that the case had been settled out of court by the Medical University of South Carolina for $440,000. The University denied negligence, but agreed to a "compromise" settlement to avoid "costs of litigation."
Protection from discrimination
In May 2016, the United States Department of Health and Human Services issued a statement explaining Section 1557 of the Affordable Care Act stating that the Act prohibits "discrimination on the basis of intersex traits or atypical sex characteristics" in publicly funded healthcare, as part of a prohibition of discrimination "on the basis of sex".
Intersex persons are also protected by the Americans with Disabilities Act.
In 2017, interACT submitted an amicus curiae in the matter of Gavin Grimm (G.G. v. Gloucester County School Board) regarding protections in education for issues of gender identity under Title IX. The submission stated that the Gloucester County School Board held a "simplistic view of "physiological" sex [that] is demonstrably inaccurate as a matter of human biology. Moreover, it demeans many thousands of intersex youth by erasing their bodies and lives and placing them outside the recognition of the law".
Third sex classifications
On Intersex Awareness Day (October 26) 2015, Lambda Legal filed a federal discrimination lawsuit against the United States Department of State for denying non-binary intersex navy veteran, Dana Zzyym, Associate Director of Intersex Campaign for Equality, a passport. On November 22, 2016, the District Court for the District of Colorado ruled in favor of Zzyym, stating that the State Department violated federal law. The ruling stated that the court found "no evidence that the Department followed a rational decision-making process in deciding to implement its binary-only gender passport policy," and ordered the U.S. Passport Agency to reconsider its earlier decision.
On September 26, 2016, California resident Sara Kelly Keenan became described as the second person in the United States to legally change her gender to non-binary. Keenan, who uses she/her pronouns, identifies as intersex "both as my medical reality and as my gender identification ... It never occurred to me that this was an option, because I thought the gender change laws were strictly for transgender people. I decided to try and use the same framework to have a third gender." In December 2016, Keenan received a birth certificate with an 'Intersex' sex marker from New York City, the first birth certificate issued using this term in the United States. Keenan had applied for a "non-binary" birth certificate but the City Department of Health and Mental Hygiene required a biological term.
Press coverage in December 2016 also disclosed that Ohio issued a birth certificate with a sex marker of 'hermaphrodite' in 2012. Ohio issues birth certificates based on "an historical record of the facts as they existed at the time of birth" and the individual was able to demonstrate a diagnosis of true hermaphrodite. Birth certificates are also known to have no sex specified.
Right to life
Robert Sparrow has stated that the genetic elimination of intersex traits might be permissible, despite "uncomfortable" implications for "other nonpathological human variations" that do not affect physical health. In response, Georgiann Davis argues that such discrimination fails to recognize that many people with intersex traits led full and happy lives, and that the "intersex community is only "invisible" to those who choose to ignore it", while "the medical profession, not the intersex trait itself, is a major source of the social and psychological harm that perpetuates intersex stigmatization and the "hostile social environment" that individuals with intersex traits encounter". Jason Behrmann and Vardit Ravitsky state that: "Parental choice against intersex may ... conceal biases against same-sex attractedness and gender nonconformity."
Notable advocates include Eden Atwood, Max Beck, Cheryl Chase, Cary Gabriel Costello, Georgiann Davis, Tiger Devore, Alice Dreger, Betsy Driver, Pidgeon Pagonis, Anne Tamar-Mattis, Hida Viloria, Sean Saifa Wall, Kimberly Zieselman and Dana Zzyym.
Personal testimonies are detailed in the San Francisco Human Rights Commission report, and also in a 2015 issue of Narrative Inquiry in Bioethics, and a Lambda Literary Award winning book, Intersex (For Lack of a Better Word), by Thea Hillman. Movies include the short, award-winning film XXXY (2000). In 2017, Hatchette Book Group published a memoir, Born Both, by Hida Viloria.
- Raming, Ida; Macy, Gary; Bernard J, Cook (2004). A History of Women and Ordination. Scarecrow Press. p. 113.
- Greenberg, Julie (1999). "Defining Male and Female: Intersexuality and the Collision Between Law and Biology". Arizona Law Review. 41: 277–278. SSRN 896307.
- E Coke, The First Part of the Institutes of the Laws of England, Institutes 8.a. (1st Am. Ed. 1812).
- Lang, Nico (December 7, 2017). "Betsy Driver Is Ready for America's Intersex Tipping Point". INTO. Retrieved 2018-09-05.
- Chase, Cheryl (2002). "'Cultural Practice' or 'Reconstructive Surgery'? U.S. Genital Cutting, the Intersex Movement, and Medical Double Standards". Genital Cutting and Transnational Sisterhood. 126.
- ""I Want to Be Like Nature Made Me" | Medically Unnecessary Surgeries on Intersex Children in the US". Human Rights Watch. 2017-07-25. Retrieved 2018-04-24.
- "A Brief History". AISDSD. Archived from the original on 2015-04-27. Retrieved 2017-01-15.
- Karkazis, Katrina (2008). Fixing Sex: Intersex, Medical Authority, and Lived Experience. Duke University Press. p. 260. ISBN 978-0-8223-4318-9.
- Re-membering a Queer Body Archived 2013-05-11 at the Wayback Machine, AISSG, syndicated copy of article from Undercurrents (May 1994: 11-13) by the Faculty of Environmental Studies, York University, Ontario.
- Re-membering a Queer Body Archived 2013-12-30 at the Wayback Machine, UnderCurrents (May 1994: 11-13), Faculty of Environmental Studies, York University, Ontario.
- Matthews, Karen (Oct 22, 2000). Debate Grows Over Using Surgery on Infants with Ambiguous Genitals. Los Angeles Times
- Murrell, Nancy (October 28, 1998). Intersex group raises questions about genital surgery. Miami Herald
- Hackford-Peer, Kim (2005). Cheryl Chase Founds the Intersex Society of North America. in GLBT History, 1993-2004; 2005, p28-30, 2p
- Human Rights Commission of the City and County of San Francisco; de María Arana, Marcus (2005). A Human Rights Investigation Into The Medical "Normalization" Of Intersex People. San Francisco. Archived from the original on 2013-12-28.
- interACT (June 2016). "Recommendations from interACT: Advocates for Intersex Youth regarding the List of Issues for the United States for the 59th Session of the Committee Against Torture" (PDF). Archived (PDF) from the original on 2017-01-04.
- "Why is ISNA using "DSD"?". Intersex Society of North America. 24 May 2006. Archived from the original on 17 June 2006. Retrieved 4 June 2006.
- "Welcome to Accord Alliance". Archived from the original on 2010-07-21.
- "Meet television's groundbreaking intersex character". Buzzfeed. Archived from the original on 2016-05-29.
- ""Faking It" Breaks New Ground With First Intersex Actor To Play Intersex Character On TV". New Now Next. Archived from the original on 5 April 2016. Retrieved 5 April 2016.
- Miller, Susan (January 23, 2017). "Model Hanne Gaby Odiele reveals she is intersex". USA Today. Archived from the original on January 23, 2017.
- "International Fashion Model Hanne Gaby Odiele Reveals She is Intersex; Announces Partnership with interACT Advocates for Intersex Youth to Raise Awareness About the Importance of Human Rights Protections for Intersex People Worldwide" (PDF). interACT. January 23, 2017. Archived (PDF) from the original on January 29, 2017.
- American Academy of Pediatrics (October 1996). "American Academy of Pediatrics Position on Intersexuality". Intersex Day. Archived from the original on 2016-01-19. Retrieved 2017-07-03.
- Holmes, Morgan (2006). "Deciding fate or protecting a developing autonomy? Intersex children and the Colombian Constitutional Court". Transgender Rights. Minneapolis, Minnesota: University of Minnesota Press. pp. 32–50.
- Beck, Max. "Hermaphrodites with Attitude Take to the Streets". Hermaphrodites with Attitude. Archived from the original on 2015-10-05.
- Holmes, Morgan (October 2015), "When Max Beck and Morgan Holmes went to Boston", Intersex Day, archived from the original on 2015-10-20
- Driver, Betsy (14 October 2015). "The origins of Intersex Awareness Day". Intersex Day. Archived from the original on 20 October 2015. Retrieved 2015-10-24.
- "Third submission to Senate Inquiry on involuntary sterilisation". Organisation Intersex International Australia. 6 June 2013. Archived from the original on 28 December 2013.
- Human Rights Commission of the City and County of San Francisco (2005). "Human Rights Investigation into the Medical "Normalization" of Intersex People" (PDF). Archived (PDF) from the original on 2018-01-04.
- "Concluding submission to the Senate Inquiry on involuntary or coerced sterilisation". Organisation Intersex International Australia. 12 September 2013. Archived from the original on 28 December 2013.
- Dreger, Alice D.; Chase, Cheryl; Sousa, Aron; Gruppuso, Phillip A.; Frader, Joel (18 August 2005). "Changing the Nomenclature/Taxonomy for Intersex: A Scientific and Clinical Rationale" (PDF). Journal of Pediatric Endocrinology and Metabolism. Archived from the original (PDF) on 20 December 2016. Retrieved 27 July 2016.
- Davis, Georgiann (2015). Contesting Intersex, The Dubious Diagnosis. NYU Press. New York. ISBN 978-1-4798-3786-1. Archived from the original on 2016-09-29.
- Davis, Georgiann (2011). McGann, PJ; Hutson, David J. (eds.). DSD is a Perfectly Fine Term": Reasserting Medical Authority through a Shift in Intersex Terminology. Sociology of Diagnosis (Advances in Medical Sociology). Advances in Medical Sociology. 12. Emerald Group Publishing Limited. pp. 155–182. doi:10.1108/S1057-6290(2011)0000012012. ISBN 978-0-85724-575-5.
- Holmes, Morgan (2011). "The Intersex Enchiridion: Naming and Knowledge in the Clinic". Somatechnics. 1 (2): 87–114. doi:10.3366/soma.2011.0026.
- Davis, Georgiann (September 2015). Contesting Intersex: The Dubious Diagnosis. NYU Press. p. 45. ISBN 9781479887040.
- "An Interview with Dr. Tiger Howard Devore PhD". We Who Feel Differently. February 7, 2011. Archived from the original on March 4, 2016.
- Briffa, Tony (8 May 2014), Tony Briffa writes on "Disorders of Sex Development", Organisation Intersex International Australia, archived from the original on 30 December 2014
- Feder, Ellen K.; Karkazis, Katrina (2008). "What's in a Name? The Controversy over "Disorders of Sex Development"". Hastings Center Report. 38 (5): 33–36. doi:10.1353/hcr.0.0062.
- interACT (May 2016). "interACT Statement on Intersex Terminology". Interact Advocates for Intersex Youth. Archived from the original on 8 June 2016. Retrieved 30 May 2016.
- Johnson, Emilie K.; Rosoklija, Ilina; Finlayso, Courtney; Chen, Diane; Yerkes, Elizabeth B.; Madonna, Mary Beth; Holl, Jane L.; Baratz, Arlene B.; Davis, Georgiann; Cheng, Earl Y. (May 2017). "Attitudes towards "disorders of sex development" nomenclature among affected individuals". Journal of Pediatric Urology. 13 (6): 608.e1–608.e8. doi:10.1016/j.jpurol.2017.03.035. ISSN 1477-5131. PMID 28545802.
- Newswise (2017-05-11). "Term "Disorders of Sex Development" May Have Negative Impact". Newswise. Archived from the original on 2017-05-15. Retrieved 2017-05-11.
- "The Pursuit of Happiness in Our Original Beautiful Bodies: Pidgeon Pagonis' Recent Testimony before the Inter-American Commission on Human Rights". interACT. April 8, 2013. Archived from the original on January 10, 2017. Retrieved January 8, 2017.
- Comisión Interamericana de Derechos Humanos (November 2015), Violencia contra Personas Lesbianas, Gays, Bisexuales, Trans e Intersex en América (PDF), Inter-American Commission on Human Rights, archived (PDF) from the original on 2016-01-07
- Tamar-Mattis, Anne (2014). "Medical Treatment of People with intersex conditions as Torture and cruel, inhuman, or Degrading Treatment or Punishment". In Center for Human Rights & Humanitarian Law, Washington College of Law, American University (eds.) (eds.). Torture in Healthcare Settings: Reflections on the Special Rapporteur on Torture's 2013 Thematic Report. Washington, DC: Center for Human Rights & Humanitarian Law. pp. 91–104. Archived from the original on 2016-03-14.CS1 maint: uses editors parameter (link)
- United Nations; Committee against Torture (December 2016). "List of issues prior to submission of the sixth periodic report of the United States of America". Archived from the original on 2017-02-03.
- Elders, M Joycelyn; Satcher, David; Carmona, Richard (June 2017). "Re-Thinking Genital Surgeries on Intersex Infants" (PDF). Palm Center. Archived (PDF) from the original on 2017-07-28.
- Weiss, Suzannah (June 30, 2017). "These Doctors Want Us To Stop Pathologizing Intersex People". Refinery29. Archived from the original on July 1, 2017. Retrieved 2017-06-30.
- Power, Shannon (June 29, 2017). "'Stunning victory' as US Surgeons General call for an end to intersex surgery". Gay Star News. Archived from the original on July 12, 2017. Retrieved 2017-06-30.
- Department Of State (October 26, 2016). "In Recognition of Intersex Awareness Day". Archived from the original on September 4, 2017.
- Human Rights Watch; interACT (July 2017). I Want to Be Like Nature Made Me. ISBN 978-1-62313-502-7. Archived from the original on 2017-10-05.
- Human Rights Watch (2017-07-25). "US: Harmful Surgery on Intersex Children". Human Rights Watch. Archived from the original on 2017-08-03. Retrieved 2017-07-25.
- Stewart, Philippa (2017-07-25). "Interview: Intersex Babies Don't Need 'Fixing'". Human Rights Watch. Archived from the original on 2017-08-03. Retrieved 2017-07-25.
- American Academy of Pediatrics (2017-07-25). "American Academy of Pediatrics Statement in Response to Human Rights Watch Report on Treatment of Children With Differences of Sex Development". Archived from the original on 2017-07-28.
- Topol, Sarah A. (August 2017). "Sons and Daughters". Harper's Magazine. ISSN 0017-789X. Archived from the original on 2017-07-29. Retrieved 2017-07-27.
- Associated Press (July 25, 2017). "Pressure mounts to curtail surgery on intersex children". ABC News. Archived from the original on July 27, 2017. Retrieved 2017-07-27.
- interACT (June 2016). Recommendations from interACT: Advocates for Intersex Youth regarding the List of Issues for the United States for the 59th Session of the Committee Against Torture (PDF). Archived (PDF) from the original on 2017-01-04.
- GLMA: Health Professionals Advancing LGBT Equality (November 2, 2016), Medical and Surgical Intervention of Patients with Differences in Sex Development
- GLMA: Health Professionals Advancing LGBT Equality (November 2016), GLMA Adopts Resolution on Care for Children with DSD
- Littlefield, Amy (August 13, 2018). "Intersex People Want to End Nonconsensual Surgeries. A California Resolution Is Their 'Warning Shot.'". Rewire.News. Retrieved 2018-09-05.
- Miller, Susan (August 28, 2018). "California becomes first state to condemn intersex surgeries on children". USA TODAY. Retrieved 2018-09-05.
- "AIC's Landmark Lawsuit Makes History!". AIC. May 16, 2013. Archived from the original on February 6, 2017. Retrieved February 5, 2017.
- Southern Poverty Law Center (May 14, 2013). "Groundbreaking SLPC Lawsuit Accuses South Carolina Doctors and Hospitals of Unnecessary Surgery on Infant". Archived from the original on July 13, 2015. Retrieved 2015-07-20.
- Reis, Elizabeth (May 17, 2013). "Do No Harm: Intersex Surgeries and the Limits of Certainty". Nursing Clio. Archived from the original on February 25, 2015. Retrieved 2015-07-20.
- Dreger, Alice (May 16, 2013). "When to Do Surgery on a Child With 'Both' Genitalia". The Atlantic. Archived from the original on July 20, 2015. Retrieved 2015-07-20.
- White, Ryan L. (2013). "Preferred Private Parts: Importing Intersex Autonomy for M.C. v. Aaronson". Fordham International Law Journal. 37: 777. Archived from the original on 2017-03-23.
- "Adoptive parents sue over son's sex-assignment surgery". Washington Times. Archived from the original on 2013-05-22.
- Aaronson, Ian A (July 2001). "The investigation and management of the infant with ambiguous genitalia: A surgeon's perspective". Current Problems in Pediatrics. 31 (6): 168–194. doi:10.1067/mps.2001.116127. ISSN 0045-9380.
- Largent, Emily (March 5, 2015). "M.C. v. Aaronson". Petrie-Flom Center, Harvard Law. Archived from the original on February 18, 2017.
- interACT (January 27, 2015). "Update on M.C.'s Case – The Road to Justice can be Long, but there is more than one path for M.C." Archived from the original on February 19, 2017. Retrieved 2017-02-18.
- Ghorayshi, Azeen (July 27, 2017). "A Landmark Lawsuit About An Intersex Baby's Genital Surgery Just Settled For $440,000". BuzzFeed. Archived from the original on July 27, 2017. Retrieved 2017-07-27.
- interACT. "Federal Government Bans Discrimination Against Intersex People in Health Care". interactadvocates. Archived from the original on 2016-05-28. Retrieved 2016-05-27.
- Office for Civil Rights (OCR) (2016). "Section 1557 of the Patient Protection and Affordable Care Act" (Text). HHS.gov. Archived from the original on 2016-05-29. Retrieved 2016-05-27.
- Menon, Yamuna (May 2011). "The Intersex Community and the Americans with Disabilities Act". Connecticut Law Review. 43 (4): 1221–1251. Archived from the original on 2017-02-02.
- interACT (March 2017), Brief of interACT: Advocates for Intersex Youth, et al., as Amici Curiae in support of respondent. G.G., by his next friend and mother, Deirdre Grimm
- "Lambda Legal Sues U.S. State Department on Behalf of Intersex Citizen Denied Passport". Lambda Legal. October 26, 2015. Archived from the original on February 21, 2017.
- Lavers, Michael (November 23, 2016). "Judge rules in favor of intersex passport applicant". Washington Blade. Archived from the original on February 2, 2017.
- "Order: Zzymm v Kerry and Portell". Lambda Legal. Archived from the original on 2017-02-02. Retrieved 2017-01-30.
- O'Hara, Mary Emily (September 26, 2016). "Californian Becomes Second US Citizen Granted 'Non-Binary' Gender Status". NBC News. Archived from the original on September 26, 2016. Retrieved September 26, 2016.
- Scutti, Susan (December 30, 2016). "NYC issues nation's first "intersex" birth certificate". CNN. Archived from the original on February 5, 2017.
- O'Hara, Mary Emily (December 29, 2016). "Nation's First Known Intersex Birth Certificate Issued in NYC". NBC News. Archived from the original on December 30, 2016. Retrieved 2016-12-30.
- "First Ever Intersex Birth Certificate Issued In America | Very Real". Oxygen.com. 2016-12-30. Archived from the original on 2017-01-05. Retrieved 2017-01-04.
- Sparrow, Robert (October 2013). "Gender Eugenics? The Ethics of PGD for Intersex Conditions". The American Journal of Bioethics. 13 (10): 29–38. doi:10.1080/15265161.2013.828115. ISSN 1526-5161. PMID 24024804.
- Davis, Georgiann (October 2013). "The Social Costs of Preempting Intersex Traits". The American Journal of Bioethics. 13 (10): 51–53. doi:10.1080/15265161.2013.828119. ISSN 1526-5161. PMID 24024811.
- Behrmann, Jason; Ravitsky, Vardit (October 2013). "Queer Liberation, Not Elimination: Why Selecting Against Intersex is Not "Straight" Forward". The American Journal of Bioethics. 13 (10): 39–41. doi:10.1080/15265161.2013.828131. ISSN 1526-5161. PMID 24024805.
- Davis, Georgiann (2015). "Voices: Personal Stories from the Pages of NIB" (PDF). Narrative Inquiry in Bioethics. 5 (2). Archived from the original (PDF) on 2017-01-09. Retrieved 2017-02-04.
- Hillman, Thea (2008). Intersex (For Lack of a Better Word). Manic D Press, Inc.
- "Articles, essays, other published work by Hida Viloria". Archived from the original on 2016-01-22. Retrieved 2017-02-05.
- Viloria, Hida. Born Both. Hatchette Book Group. ISBN 9781478940715. Archived from the original on 2017-02-06. Retrieved 2017-02-05.
- Davis, Georgiann (2015). "Voices: Personal Stories from the Pages of NIB" (PDF). Narrative Inquiry in Bioethics. 5 (2). Archived from the original (PDF) on 2017-01-09. Retrieved 2017-02-04.
- Davis, Georgiann (2015). Contesting Intersex, The Dubious Diagnosis. NYU Press. New York. ISBN 978-1-4798-3786-1.
- Dreger, Alice (2015). Galileo's Middle Finger: heretics, activists, and the search for justice in science. New York: Penguin Press. ISBN 9781594206085.
- Elders, M Joycelyn; Satcher, David; Carmona, Richard (June 2017). "Re-Thinking Genital Surgeries on Intersex Infants" (PDF). Palm Center.
- Greenberg, Julie A. (2012). Intersexuality and the Law: Why Sex Matters. New York: New York University Press.
- Hillman, Thea (2008). Intersex (For Lack of a Better Word). Manic D Press, Inc.
- Human Rights Commission of the City and County of San Francisco; de María Arana, Marcus (2005). A Human Rights Investigation Into The Medical "Normalization" Of Intersex People (PDF). San Francisco.
- Human Rights Watch; interACT (July 2017). I Want to Be Like Nature Made Me. ISBN 978-1-62313-502-7.
- interACT (January 2017), Media Guide, Covering the Intersex Community (PDF)
- Karkazis, Katrina (2008). Fixing Sex: Intersex, Medical Authority, and Lived Experience. Duke University Press. ISBN 978-0-8223-4318-9.
- Tamar-Mattis, Anne (2014). "Medical Treatment of People with Intersex Conditions as Torture and Cruel, Inhuman, or Degrading Treatment or Punishment". In Center for Human Rights & Humanitarian Law; Washington College of Law (eds.). Torture in Healthcare Settings: Reflections on the Special Rapporteur on Torture's 2013 Thematic Report. Washington, DC. pp. 91–104.
- Viloria, Hida. Born Both. Hatchette Book Group. ISBN 9781478940715. Retrieved 2017-02-05.